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AC Immune Working to Move TDP-43 Antibody Into Clinical Testing for ALS
AC Immune is planning to advance its investigational anti-TDP-43 antibody into clinical testing for neurodegenerative diseases, like amyotr

Jonathan Shar
Aug 11, 20202 min read


Overuse Of Remote Medical Consultations Threatens The Safety Of Disabled Patients
The human capacity to embrace change and pivot rapidly has been seen as one of the few positives to emerge out of the gloom of the pandemic.

Jonathan Shar
Aug 10, 20205 min read


Lara MP John Eren receives widespread support after publicly revealing Parkinson’s diagnosis
Support has poured in for Lara MP John Eren after he publicly revealed his battle with Parkinson’s disease.

Jonathan Shar
Aug 10, 20202 min read


MD Advocates Offer Advice for Students With Neuromuscular Disorders Amid COVID-19
The event featured Christopher Rosa, PhD, former MDA board member and current assistant vice chancellor for student inclusion initiatives at

Jonathan Shar
Aug 7, 20203 min read
Aural Analytics To Power Speech-Based Endpoints For The Healey Center ALS Platform Trial at Mass Gen
Aural Analytics, Inc., a privately-held digital health company developing the world’s most advanced suite of clinical-grade speech analytic

Jonathan Shar
Aug 7, 20203 min read


Implanted Neural Stem Cell Grafts Show Functionality in Spinal Cord Injuries
Using stem cells to restore lost functions due to spinal cord injury (SCI) has long been an ambition of scientists and doctors. Nearly 18,0

Jonathan Shar
Aug 6, 20203 min read


The History of Ehlers-Danlos Syndrome Research Is Fascinating
Pretty much anyone who’s read my column knows I work as a college counsellor, live on a farm, and have horses.

Jonathan Shar
Aug 6, 20202 min read


Governments urged to prioritise Victorians with disability during second COVID wave
Disability groups say a holistic plan is urgently needed to protect Victorians with a disability during the state’s extended lockdown period

Jonathan Shar
Aug 6, 20203 min read


AstroRx Slows ALS Progression at All Doses Tested, Trial Shows
Kadimastem’s cell therapy candidate, AstroRx, significantly lower the rate of disease progression in people with amyotrophic lateral scleros

Jonathan Shar
Aug 6, 20204 min read
New genetic cause of a form of inherited neuropathy
Inherited mutations in a gene that keeps nerve cells intact were shown, for the first time, to be a driver of neuropathy known as Charcot-Ma

Jonathan Shar
Aug 4, 20203 min read


An Open Letter to the Chronically Ill Professional
It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ app

Jonathan Shar
Aug 4, 20202 min read


COVID-19 patients could be at risk for chronic fatigue syndrome
As the world continues to watch the number of COVID-19 cases increase (and daily records being broken), patients with myalgic encephalomyel

Jonathan Shar
Aug 3, 20204 min read


New Screening System Allows HEDGE Study Enrollment Without In-person Visits
A new screening system will allow people with hypermobile Ehlers-Danlos syndrome (hEDS) to participate in the worldwide Hypermobile Ehlers-D

Jonathan Shar
Jul 31, 20202 min read


Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
Researchers have developed the first thread-based flexible patch that can be sewn into clothing to monitor — in real-time — several molecule

Jonathan Shar
Jul 31, 20204 min read


The Science Behind Mannitol: How a Simple Sweetener May Help Parkinson’s Patients
The idea that a simple over-the-counter supplement called mannitol might alleviate the symptoms of Parkinson’s disease has been gaining trac

Jonathan Shar
Jul 30, 20207 min read


Proteins — and labs — coming together to prevent Rett syndrome
New discoveries about the disruption of condensates in the neurodevelopmental disorder Rett syndrome provide insights into how cells compart

Jonathan Shar
Jul 30, 20204 min read


Ultrasound Measures of Muscle May Help in Diagnosing, Evaluating ALS
Measurements taken of muscle using ultrasound could be useful in diagnosing or managing amyotrophic lateral sclerosis (ALS), a small study s

Jonathan Shar
Jul 30, 20202 min read


A Boy With Muscular Dystrophy Was Headed For A Wheelchair. Then Gene Therapy Arrived
This is the story of a fatal genetic disease, a tenacious scientist and a family that never lost hope.

Jonathan Shar
Jul 28, 20208 min read


Virtual Walk & Roll Event On Sept. 12 Targeting Muscular Dystrophy Cure
With a goal of finding a cure to facioscapulohumeral muscular dystrophy (FSHD) by 2025, the FSHD Society’s third annual Walk & Roll To Cure

Jonathan Shar
Jul 28, 20202 min read


New FUS Mutation Linked to Aggressive ALS in Teenage Girl
A new mutation in the FUS gene, which results in a shorter version of the FUS protein that cannot enter form the cell nucleus to work as it

Jonathan Shar
Jul 28, 20202 min read
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